Sighs and Hallelujahs Stories and thoughts about the adventures of life without arms

11Oct/110

Sometimes it would be easier if I had arms

That was the not-so-shocking revelation I had today. Yes, I informed myself that sometimes -- not all the time -- my life would be easier if I had arms.

I had stopped by Starbucks on the way back from lunch and picked up a pumpkin spice latte to get me through the cool, drizzly and blustery afternoon. I was so much craving the comfort of a warm drink that I didn't calculate the effort of carrying said drink back to my office, some five to six blocks away.

Tasks like these aren't abnormal for me on a daily basis and this one wasn't too different. Except for the fact that, even with a sleeve around it, the cup began burning the side of my face where I grasped it. Halfway back I realized I was spilling coffee on my shoulder and jacket. And, nearly every person I passed seemed to glance at me strangely as I carried a cup of coffee on my shoulder. So, I simply announced to myself as I walked up the hill, that having arms would be nice at times.

Exceptionally obvious to any outsider, it caught me a bit off guard. What struck me were a few different things:

1. It's amazing what we, as human beings who can adapt so well, can get accustomed to a norm that's not so normal. For me, after 34 years of living without arms, tasks like carrying a coffee on my shoulder have become fairly routine. Why all the weird looks from folks as they passed by? Because I was carrying a grande latte on my shoulder! Worth a second glance? Likely. So, telling myself that arms would be helpful in this endeavor -- nonetheless making me a bit more inconspicuous -- wasn't exactly a brilliant discovery. But, it caught me off guard and it felt a bit like I was complaining. Which leads me to my next point.

2. Stating a fact is not complaining. When your cheek is burning, you've soiled your jacket with milk and everyone seems to stare at you as you pass, sometimes you've just got to acknowledge the obvious -- that this challenge, and life in general, would be a bit easier with the assistance of arms. There's no pride lost in that. A fact is a fact. If you think I'm a whiner for it, then why don't you follow me around for a day and I can show you what life is like without the benefit of arms? Most of us (especially Christians) want folks like me to say everything is just dandy and that life is grand. We all know life isn't grand at certain times and we've got to learn to be honest with ourselves and one another in those moments.

3. Finally, I think we all need to find moments of respite and rest. We, especially as Americans, excel at running at a rapid pace and ignoring the felt needs of our bodies and our minds. That's what caught me most off guard: that my body and soul recognized the struggle and discomfort I was feeling and decided it was worth pausing to recognize. Now, I didn't stop right there on the sidewalk, drop my coffee and enjoy a nice stroll back to the office. (I did say I was craving this coffee!) But, in being kind enough to myself to acknowledge the facts, I recognized that some daily tasks like transporting a coffee are more difficult for me than for others. Hopefully that translates into accepting help from others in the future or giving myself a break when I feel lazy for not wanting to deal with something around my disability. Our bodies and minds cry out every once in a while and we'd be wise to hear them when they plead to us.

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11Oct/094

A Level Playing Field

Last week I read an article in Sojourners magazine by Rose Marie Berger titled "On the Seventh Day, God Played." (You can view the article here. Free registration is required.) Just by the title of the article you get a sense of her main points: that we don't rest and play enough; and that we need to incorporate play into our lives more if we want to imitate God.

Granted, I was on vacation when I read this -- a vacation that was filled with rest and play. But, the point remains pertinent to me tonight as I feel like writing a blog post is the final thing to check-off my to do list for the weekend. The concept that play is holy and necessary is freeing. You mean I don't always have to be productive?

Within the article Stuart Brown, a researcher on play, says there are seven properties that identify play:

1. is done for its own sake
2. is voluntary
3. has an inherent attraction
4. involves freedom from time
5. involves diminished self-consciousness
6. involves improvisational potential
7. involves the desire to keep doing it

No, doing the dishes or laundry is not play!

As Berger notes in her article, Christians often fail the worst at incorporating play into their lifestyles. "The 'Protestant work ethic'," she says, "has left us with a slight religious distaste for fun." So, some of us have that working against us.

But, I find that I often have another thing working against me as a man born without arms. The best I can describe the feeling is that I feel like I live life "working from a deficit." In other words, due to my disability I often feel like I need to put in more effort (or play less) in order to make up for what I lack physically. I type slower than some others, so I need to work extra hours to make up for that. I need your help to replace a light bulb in my condo, so I do all I can to help you in other ways to make up for it. You may think less of me due to my lack of arms, so I'll make sure my car, house or work space is clean in order to impress you. Sounds crazy, huh? When you feel less than those around you, you'll do interesting things to compensate for it.

The good news is that I've begun to recognize that within myself these past few years and I combat against it (yes, it's that violent of a fight) often. Here are a few ways I allow myself to rest and play, instead of doing more to make up for the perceived deficit of my disability:

- Being cognizant of what is being done as a "to do" versus what gives me energy and life. An example of this comes from my recent vacation to San Diego. On my final day there I had planned to go to Balboa Park. However, I'd stayed up late on the weekend nights and was worn out. So, play meant giving up the experience of Balboa Park in favor of a slower day of sleeping in, taking my time packing up and reading by the pool.

- Limiting the number of hours at the office, whenever possible. We're all busier than ever at work due to the down economy, but more and more I find myself choosing to play and rest instead of working over the weekends. Matter of fact, I brought this laptop home from the office with the intent to work over the weekend. Other than booking hotel reservations late last night, I've avoided work all together. It will be there when I get to the office tomorrow. I may need to work evenings this week to make up for it, but I rested this weekend and that fills my soul for the week ahead.

- Discovering hobbies. As a child I don't recall too many times of outright play. There were neighborhood games and watching sports, but so much of my memories are of homework, church activities, chores, etc. It wasn't until a few years ago that I realized I didn't have any hobbies! So, I've begun playing by trying out different things. This blog and the process of telling my story is one. I took a wine class last year and this fall I'm enrolled in a cooking class. I'm learning to try different activities in order to see if they'll become hobbies.

I still don't play as well as I'd like to. The fact that scraping out three items for the list above was difficult should be adequate proof of that! But, I'm working on it. I mean, playing on it. It's the one area where we're all on a level playing field.

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3Aug/095

Why do I do all this?

Why do I do all this?
Double-digit hours at work, followed by seemingly endless studies.
Factor in errands and relationships and my schedule feels like Escher’s staircase.
No reprieve and little rest.
Certainly very little space to simply be.
Be the image of God. Be playful. Be present. Be me.

Who am I trying to impress?
Myself? Not impressed, just tired and worn out.
God? He’d be more impressed if I just rested in faith.
You? Maybe. So, how am I doing so far?

Oh, how I enjoy the pat on the back or the kudos of a job well done.
I thrive on that, it seems.
Work becomes a place for me to prove that “I can.”
If only through working more hours or saying the right thing.
“You’ll see,” I say. “My disability can’t stop me.”

So, why grad school?
Yes, I thought God was calling me.
Either he changed his mind or I missed his call the first time.
Either way, what compels me to study and write after most folks have retired for the night?
Will you be impressed if I stay up reading after midnight and, then, am in the office at 8 a.m.?
Does a high GPA entice you to like me more?
Once again, I’ve got something to prove.
Nothing is going to stop me – even if my sanity and soul are at risk in the pursuance.

But, very little do I pursue life.
Friend, you know when I’m pursuing life.
I make time for you – to enjoy a meal together, to drink a bottle of wine, to laugh.
But, it feels that those times are too few and too rushed.
I must get back to impressing you.
Sorry to check out, but I need to be productive.

What am I producing, though?
Memos, papers, arrogance.
There is very little time for things like intimacy, conversation, play and the like.
If you’ve experienced that with me, then welcome.
Welcome to the real Greg.
Welcome to the guy that’s stepped out of the hamster wheel, if only temporarily.
Welcome to me being. And, thank you for allowing for that.

Well, it’s late and I must get back to reading.
I must, or else you might not be impressed.

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