Sighs and Hallelujahs Stories and thoughts about the adventures of life without arms

25Jan/121

An Ocean of Goldfish

What do I do when I feel like a goldfish with a fake shark fin on?  How do I handle feeling totally unprepared for the task at hand (no pun intended)?

I look around.  I see others all around me with their fake shark fins on.  Even Doro from Finding Nemo understood this: "This is the Ocean, silly, we're not the only two in here."

Except that the ocean we're in is completely full of scared, alone and tired goldfish that are afraid of being exposed.  See that shark fin belted on to that guy?

What struck me most about feeling like a fraud in the story I told in my previous post was that I felt this way in a work context.  There are many areas in life where I claim absolutely no level of intelligence -- areas like fashion, auto mechanics, and pop culture (I confused Elton John and Billy Joel last week!).  But, at work I tend to feel fairly competent and confident.  I've been in the fundraising business for 12 years, I'm a fairly intelligent guy and I work my ass off.  So, that combination means I tend to succeed at work.  I didn't feel that way in this case, though, and it completely threw me off.

Why do I mention this? Because those sharks that you see every day at work, school or on the athletic field are operating in their area of strength.  And, in witnessing that, we've all become convinced that we're the only fake sharks swimming in the ocean.

Truth is, however, that each and every one of us is toting that fake shark fin along within some aspect of our lives.  Kobe Bryant is a shark on the basketball court, but apparently is an f-ing goldfish when it comes to marriage.  Many scientists are goldfish when it comes to social settings.  And, the guy giving that amazing sales presentation?  Yeah, he's a goldfish of a dad when he's at home.

When I was young the local paper came out and did a feature article on me -- including great photos like these:

Besides the fact that I was pretty damn cute back then (!), the thing that I remember most about that article was that my mom was quoted as saying something to the effect of -- "Everyone has a disability.  It's just that Greg's is visible."

This is exactly what I'm getting at.  "Yes, sir, you may have arms that allow you to reach that can of spaghetti sauce on the grocery store shelf and I can appreciate that because I need your help to put one of those in my basket.  But, friend, I bet you're feeling pretty un-shark-worthy is some other aspect of life right now."

See?  Just because I feel alone, small and incompetent doesn't mean that I should run and hide.  Where can I go to hide anyway?  In another school of goldfish?  This entire earth is full of us.

Instead, I've learned to admit my "fake shark fin" moments and to just be a goldfish that needs help.  Here are a few examples of what that means for me, specifically around my disability:

  • That spaghetti sauce example?  I probably did something like that last week.  I'm not afraid to ask strangers to help reach items on higher shelves at the grocery store.
  • Admitting that I'm tired and could use some help.  I can cut a steak at a restaurant, it just takes some time.  Last week, though, I asked a co-worker to help me with the task in order to make it easier.
  • Making my friends and family aware of my needs and limitations.  No need to disguise the fact that I can't use the restroom on an airplane when you're lecturing me about the need to drink more water.  "See this fake shark fin?," I ask?

These are just a few examples, of course.  What areas will you admit your goldfish-ness in?  Relationships, addiction, spirituality?

What's refreshing is that in risking seeing ourselves for the f-ing goldfish that we really are, we often find others who reach up and pull down their shark fin.  And, the relief clearly shows on their faces as they recognize they've encountered someone who's honest and real.

Try it - you'll be amazed of how many goldfish are out there!

23Jan/121

I’m Not a Shark

It feels like this sometimes, doesn't it?  Out of place, over-matched and just hoping that the real sharks don't notice you.

I know most of us feel it at times.  Some weeks we're feeling good about ourselves and our confidence is high.  Others, well, we feel totally inadequate and like a fraud.  This past week was riddled with "I'm a f-ing goldfish with a fake shark fin!" moments for me.  Moments that made me want to run (or swim?) and hide.

Unprepared.  Feeling unsupported.  Aware that I was now in the ocean.  Recognizing that those close to me got to see me for who I really was -- a goldfish that had no right to be swimming with the sharks.  It was terrifying to be so scared, alone and overwhelmed.  And, worst, to recognize that I'd lost the trust of those to whom I so desperately cling to for approval.  "Please, Lord, just let them see the fin!"

What struck me most about the events of the past week is how deficient I felt.  Simply, I felt small and counterfeit.  It's just not the way I'm used to feeling at work.  However, this weekend it struck me that it's exactly the way I feel most every day when it comes to functioning with a disability.

"Please, Lord, just help me not stand out too much."  That phrase plays like a broken record in my mind, over and over.  Such a silly request for a guy without arms!  How in the world will I not stand out in so many contexts?

I feel like this posturing fish most of the time, though.  "No, thanks.  I think I've got it.  I appreciate the offer of help, though," I say, as I do my damnedest to swim in a pattern that makes me look like a shark on the surface of the water.  And, in all honesty, most of the time I feel like I've gotten away with it.  "You're amazing," I hear as the terror strikes - the terror that they might just see past the surface of the water.

I'm a goldfish, folks.  That's what I realized this week.  I may have pulled off the shark routine to some last week and I even got the affirmation of "very good job."  But, that game only goes well for so long.  Tonight I'm jumping out of the water to reveal what's below the surface.

Over the next week I'll spend some time here at Sighs & Hallelujahs exploring the ways that I deal with the "I'm a f-ing goldfish with a fake shark fin!" syndrome around my disability. For those in the same ocean, I hope you can resonate with what I'm saying and realize that you're not the only one feeling so scared and vulnerable.

And, for those that aren't disabled, I hope you'll learn -- and that themes the I explore will be helpful to each and every one of us as we consider those areas in which we feel so small and inadequate.

11Oct/110

Sometimes it would be easier if I had arms

That was the not-so-shocking revelation I had today. Yes, I informed myself that sometimes -- not all the time -- my life would be easier if I had arms.

I had stopped by Starbucks on the way back from lunch and picked up a pumpkin spice latte to get me through the cool, drizzly and blustery afternoon. I was so much craving the comfort of a warm drink that I didn't calculate the effort of carrying said drink back to my office, some five to six blocks away.

Tasks like these aren't abnormal for me on a daily basis and this one wasn't too different. Except for the fact that, even with a sleeve around it, the cup began burning the side of my face where I grasped it. Halfway back I realized I was spilling coffee on my shoulder and jacket. And, nearly every person I passed seemed to glance at me strangely as I carried a cup of coffee on my shoulder. So, I simply announced to myself as I walked up the hill, that having arms would be nice at times.

Exceptionally obvious to any outsider, it caught me a bit off guard. What struck me were a few different things:

1. It's amazing what we, as human beings who can adapt so well, can get accustomed to a norm that's not so normal. For me, after 34 years of living without arms, tasks like carrying a coffee on my shoulder have become fairly routine. Why all the weird looks from folks as they passed by? Because I was carrying a grande latte on my shoulder! Worth a second glance? Likely. So, telling myself that arms would be helpful in this endeavor -- nonetheless making me a bit more inconspicuous -- wasn't exactly a brilliant discovery. But, it caught me off guard and it felt a bit like I was complaining. Which leads me to my next point.

2. Stating a fact is not complaining. When your cheek is burning, you've soiled your jacket with milk and everyone seems to stare at you as you pass, sometimes you've just got to acknowledge the obvious -- that this challenge, and life in general, would be a bit easier with the assistance of arms. There's no pride lost in that. A fact is a fact. If you think I'm a whiner for it, then why don't you follow me around for a day and I can show you what life is like without the benefit of arms? Most of us (especially Christians) want folks like me to say everything is just dandy and that life is grand. We all know life isn't grand at certain times and we've got to learn to be honest with ourselves and one another in those moments.

3. Finally, I think we all need to find moments of respite and rest. We, especially as Americans, excel at running at a rapid pace and ignoring the felt needs of our bodies and our minds. That's what caught me most off guard: that my body and soul recognized the struggle and discomfort I was feeling and decided it was worth pausing to recognize. Now, I didn't stop right there on the sidewalk, drop my coffee and enjoy a nice stroll back to the office. (I did say I was craving this coffee!) But, in being kind enough to myself to acknowledge the facts, I recognized that some daily tasks like transporting a coffee are more difficult for me than for others. Hopefully that translates into accepting help from others in the future or giving myself a break when I feel lazy for not wanting to deal with something around my disability. Our bodies and minds cry out every once in a while and we'd be wise to hear them when they plead to us.